On Monday the neurologist spent over an hour with me, reviewing symptoms, testing my hands, feet and legs. The bad news it the extent of my neuropathy is "quite significant" (my doctor's words). The worst part starts at my toes and covers my feet to my ankles. For example, during one of the tests I couldn't tell which direction she was moving my toes. To a lesser degree, the damage extends up to my knees. It is also prominent in my fingertips. For some reason the damage finds the nerves farthest from the brain, which is the feet, and then works it's way up the body. I also have damage in my finger tips because when my arms are at my side, my fingers are close to reaching my knees, thus making those nerves a considerable distance from the brain as well and a good place for the nerve damage to take up residence. I asked why I wasn't seeing any improvement since my last chemo and that is because the nerves only heal a millimeter at a time. The doctor said to measure my recovery in months not weeks. So, four months from now I should assess my improvement compared to today. The not so reassuring part was that the chemo patients she has had over the years generally saw only a 40-60% improvement in symptoms. Sorry, but I am ready to have a 95-100% improvement … so watch out shitty statistics, I'm gunning for ya!!
|Good bye old friend, you served me well.|
|the chemo port that was installed just above my right breast|
|The protective bandage is a bazillion times bigger than the incision to remove the port.|